SADLY, many medical professionals discourage parents from seeking hyperbaric oxygen therapy for their children. This blog is set up with the hopes that other parents will see the validity of the treatments.
Below you can follow along with us as we see and report on Ryan's continued progress while completing therapy at Hyperbaric Therapy of the Lowcountry.
March 20, 2012
Much of my delay in posting has been in trying to figure out how to explain the excitement that we have. Of course, now we have the above pictures showing him pushing the truck.....this displays a ton of motor planning and processing. It is huge for him. The part that is difficult to explain is the thoughtful looks that he has. Communication has gotten easier because when we go through the list of possibilities on what he wants or needs he laughs or smiles when we get to what he wants. If he doesn't want it, he looks away and frowns. All of that, of course, lessens his frustration and makes a huge impact on his quality of life and motivation at attempting new things.
He is continually trying new sounds. Though his favorite and strongest sound remains, "EYE!!!!" with a tone of sarcasm at our lack of wisdom in thinking he could possibly see without them. He is also continually working on, "I ove ou." Some days it is harder for him to say than others but even the attempt on an off day melts this Momma's heart. He is getting so strong in his trunk and those tendons are starting to have some "bounce" to them as Ms Tammy would say.
We also have to give a huge thank you to Ms Lisa and Miss Lizzie for giving him his new seat. He loves it and it gives him time to think about what is on his tray and decide what to do. Thank you!!!! We love you!!!
He displayed a lot of interest in Ms Dina's iPad during OT this week. We are requesting funding for that through the insurance company this month. Please pray for favor. Some of the communication apps would be excellent for him and far cheaper than a Dynavox.
July 19, 2011
July 10, 2011
Here is one of my favorite updates. One of the struggles we have with Ryan is he can be seemingly happy and then he will suddenly scream out in a little tantrum. Scream is an understatement. Whew! When we are at home he goes into time-out for that but in public that is difficult. Sunday he screamed out at me so I pushed his wheelchair out of the flow of traffic, knelt down beside him, made eye contact, pointed to his leg and said, "I know you want out of this chair and I am about to get you out but if you scream at me one......more......time I will pop you on your leg." He looked up and gave me a cheesy "I was just kidding" grin and did not scream again. This change is one of the most stress reducing changes to date. Praise God!! This alone would be worth our trip to Hilton Head. ; )
July 7, 2011